Crazy-Ass Welcoming Committee

This blog is not entirely solopsistic, though it might seem so. But truly -- beyond wanting to bash my head into a wall -- I am putting this down for posterity. Because no one invites you into the Bipolar, unemployed, uninsured, disability club. And frankly, someone should. There should be a full-blown, crazy-ass welcoming committee. And in it, there should be information on FMLA, the American Disabilities Act, the EEOC, and your local Department of Health and Human Resources. Because you will never see Oprah touting the latest diet craze: The Poverty Diet.

Department of Health and Human Resources: Your state has one. It is like the DMV. No one will explain anything to you. Checkmark anything that might give you money. They would be very happy not to give you any resources at all. They are helpful like that.

SSDI/SSI: Whether you are truly disabled or not, you will not get this. If you even apply for disability insurance (i.e. the government's money), they will reject you off-hand, and if you truly want to be stubborn, you need a lawyer and copious notes of dates and days before the government will let you pry any money at all from their cold, dead hands.

Hospitalization: There are good and bad mental wards. Your PCP probably knows something about this, as might your therapist or psychiatrist. Ask. All mental wards are not the same, but they are a little like prison. Keep juice boxes and fruit to trade for other useful items.

Food Stamps: Do not be fooled by the rhetoric. If you want your SO to be able to use the card, he can. No one checks who it belongs to. Do not, however, put their name on your application for food stamps unless you are married. If you do, you will not receive enough money to feed a gerbil.

The Poverty Diet: When the DHHR determines that, though you've been fired and have no money of your own, you aren't eligible for emergency food stamps, become religious. Religious charities are the number one place to receive donated food. Humbling, yes, but your stomach ain't rumbling.

Temporary Disability Assistance: There is such a thing, but you aren't supposed to know. This is why you check every box when you are in the DHHR. This can be hidden under something called Temporary Cash Assistance. Do not be fooled.

FMLA: Yes, you can take nearly 12 weeks of leave under the Family Medical Leave Act. Your employer, however, will not like you, and most likely, they will find another reason to fire you -- if they don't force you into a voluntary resignation.

EEOC: You will spend half your day waiting for the three appointments they have available that day. In your appointment, they will listen very kindly, then tell you they cannot help you -- unless you wish to make your employer conform to the American with Disabilities Act.

ADA: The American with Disabilities Act does, indeed, protect your right to certain accommodations within reason. Your employer, however, has a much different definition of "within reason" than you do.

Unemployment: If your doctor has signed a paper telling the State that you are unable to work for a year and if you receive temporary disability from the state, you cannot get unemployment. Unemployment is only for people able and willing to work (i.e. though the body may be willing, the mind is not; your mileage may vary).

Medical Assistance: You can apply for this, too, from your local DHHR. While you're virtually guaranteed some sort of declaration about your food stamps and temporary disability within 30 days, medical assistance is a totally different beast. The medical assistance board is always backed up, and apparently, no one has -- or will divulge -- their phone number. You will rot for three months or more before you hear anything about this. Once you do, you'll understand why it's worth the wait.

Medicaid: Your medical assistance has been approved. If you're lucky, you get a nice shiny packet explaining things. If you're not so lucky, you get a phone call telling you that you have two days to find a Managed Care Organization and a PCP. However, once this is achieved, you will realize that when politicians talk about the Health Care Crisis, they are not talking about Medicaid. Medicaid is what it must be like to live in Canada. Your prescriptions are $1, your visits to your psych, therapist, dentist, and doctor are free. As are a host of other disasters.

Bankruptcy: It happens. You can't get unemployment, the state barely pays you enough to eat, and it could be months before you get medical assistance. In the meantime, you are accruing debt and medical bills as if you can afford to. Call your Credit Counseling Service. Then call your local Legal Aid office. They will waive all fees for their assistance. Go figure.

Psychiatrists/Therapists: Believe it or not, the title does not always fit the figure. Psychiatrists and therapists, the ones with the shiny credentials, may suck wombats. Most nurse practitioners and licensed social workers are far more caring. It can leave you dumbfounded when they actually listen to you.

Seriously, these are all things I wish someone would have told me. I learned it all the hard way, and not everyone wants to self-educate. These tidbits are valid, however, and have been learned through harsh real life experience or from other patients in the mental ward.

Success!

Very brief post here, but I wanted to jot down what happened at the Department of Health and Human Services today. I got there an hour early (Because, face it, it's not the kind of appointment you want to miss; they can give and they can take away.) My new caseworker was so much better than my old caseworker, who made me cry. Of course, at the time, I'd only been out of the hospital a month. But this caseworker wasn't trying to tell me that a cell phone bill didn't count as a phone bill and yada yada. In fact, when I told her I never meant to have Jb on my food stamps account, she went ahead and took him off, even though I'm technically supposed to send in a form. And get this, with him off, my food stamps go from $58 to $168. Wee bit of difference.

As for the Temporary Disability/Cash Assistance, that's reviewed in December, and she's going to review the food stamps in December, too, since she wants to be efficient and not make me come in more times than necessary. She also said that as my medical assistance (i.e. health insurance through Maryland) lasts until April, my food stamps and cash assistance will probably be approved and renewed until then as well. Whew. One less thing to worry about.

On the down side, I still haven't received the packet from the medical assistance program that has my card or the information I need to start receiving those benefits. And the two therapists I was referred to through the mental health program don't work for the assistance program anymore. So yet another set of strike-outs. I swear, getting a therapist has been the hardest thing I've ever had to do out here. One guy offered to take me, but only for $350 up front and another $200 each session. I nearly cried I laughed so hard.

Oh! And my stimulus check came from the government. $600 big ones. And all of it is already spent. Go figure. But it's on necessary things. Some very expensive, out-of-pocket medical things, a couple new blouses to do interviews in when I'm ready for that, and a haircut that I've been dying to get. So, things are looking up. And despite the nerves, I felt okay today.

Morning Check-In

Sleep: Up since 8:30ish. Not so bad. Had Jb still been around this morning, I'd have begged him to take a day off. Don't want to be alone today. Slept fairly well last night, though, I think.

Dream: Had a dream about my ex-husband. How we were both dating now, how we'd both changed, seen the changes in each other, and wondered if those changes would have made a difference when we were still together. Sure that they would have. But that all passed us by.

Cigarettes: Still smoking. Probably a good 4-6 yesterday. It's good I bum off Jb so they're not around during the day, though I could use some later when I go to the DHHS.

Weight: Don't want to look. No need to ruin an already stressful day. Besides, we ordered in last night and I had a P'zone, so that can't be good.

Meds: Compliant. Took them last night and this morning.

Food: Protein Boost Special K (the psych says I need protein) with a little milk and an apple.

Mood: Enh. I'm here. Like I said, this morning I was a little grasping, would have wanted Jb to stay home, which he wouldn't have and couldn't have. I'm intensely lonely and isolated right now due to the unemployment. It's made me needy and restless. Think it might be time to find that part-time job when I get my stimulus check and can afford a new blouse to interview in.

To Do: Should call HealthChoice and see if they sent my insurance package yet. Need to reschedule psych appointment. Need to schedule a PCP appointment for blood work. Need to find a therapist, which means making some calls.

The Bad Part of My Day: Have an appointment at 4:30pm at the Department of Health and Human Services to review my need for food stamps and temporary cash assistant/temporary disability assistance. Both rather important things that are helping us get by right now. So, of course, the stress about this started last night.

Relationship: Jb and I are snapping at each other a great deal. I'm ugly and mean a great deal of the time, irritated by everything and hateful. It shows in contempt and so many other ways that I feel like if I can't control this, get even somehow, I'm going to ruin everything. I used to treat my ex this way, and it's little wonder he never wanted much to do with me. He was always happy to go his own way. I'm sure, toward the end, he never felt loved. How could he?

I miss friendship, though. Not the constant caretaking of a relationship, but the ease of a friendship where you're allowed to be who you are without having to worry about stepping on someone's overly sensitive feelings. Everything becomes internalized in relationships, when I'd really rather just have someone to listen and say, "Yeah, that really sucks, you know?" And affection, an arm around the shoulder, a hand at the small of my back, some actual caretaking, the kind you get from a parent if you have good ones: a shoulder rub, a smoothing back of your hair, a body to curl up into and hug, a sense of safety and being loved. I get tired of paying bills, doing dishes, doing the grocery list, cooking, doing this or that, being responsible for this or that. I feel like I'm only good for the things I do in this relationship, and I'm tired of taking all the responsibility for these things. It's too much, and I resent it.

Monday

I always go into the week determined to do better, do more, feel better. The past several nights I've had problems getting to sleep, staying up as late as 3am. Not surprisingly, I'm sleeping later in the mornings--until almost 11am. When I wake up, I'm still groggy for several hours. I've read more than one article in the past that directly links insomnia and hypersomnia to episodes of depression and mania, so I think it's important to be noting this change in my sleeping habits. For example, right now, I could really use a nap. I slept until 11am, and at 3pm, I'm already tired.

Having said that, I started off on the right foot for once on a Monday. I spent much of the morning fleshing out characterizations for the series I'd like to write. I think I've done enough characterization to actually start writing. On a side note, one of the reasons I think I'm staying up later is the books. For some reason, at night, once the lights are out and the tv quiet, I start hashing over the plot and characters in my head, imagining scenes, narrating them to myself. It's an important process, though, and I hate the idea of curbing it, as these characters are real to me, and they talk to me and reveal themselves to me during these times.

I have also found the paper for the printer and envelopes. That means I can begin typing up a letter to HR telling them to shove it, as they've given me no further documentation of my unpaid leave of absence, a bill for the amount they overpaid me while on FMLA, information about Cobra, or a copy of my file, all of which I asked for back on May 9th. Cutting all ties makes me nervous, though, as I'm still able to get insurance with them for roughly $100 a month. I'm terrified of not having insurance, of being unable to pay for my prescriptions or the necessary doctor visits. Hopefully, unemployment and Cobra will help with that. I also plan to send in an application to the county for their adult pharmacy care program.

On top of that, management is bringing in inspectors to check out the apartments tomorrow. Ours is really fairly clean. I need to do dishes, pick up some trash. But overall, far more clean than our old apartment. I attribute this to the fact that we've actually tried to keep the place clean and to the fact that we now have hardwood floors. With Jb's dirty, outside work, there was no hope for keeping a carpet clean, add to that a sick cat, and well, good luck. Our new cat, however, is so low-maintenance, we're stunned. She leaves no mess, except right around her litter box. But that's very manageable.

I am, I admit, starting to feel a little overwhelmed by all the things I need to do. And the anxiety and IBS is there in spades. I'm due for another appointment with my PCP for blood work and with my gastro doc for a check-in. I really don't want to do either. And I've an appointment with the county to reassess my need for county assistance on the 14th. And a class on bankruptcy at the end of the month. In the meantime, we get by as best we can, and Kat Eggleston's "One More Step" is my theme song:

So you walk like you've never faltered
So you move like you still had faith
Head down and a turned up collar
Through a string of long, hard days
Walking through the darkest passage
Though you saw no light ahead
And your greatest act of courage
Was in taking one more step.

So you raise your voice in sorrow
'Til you heard no other sound
Saw nothing but your own shadow
With your eyes turned toward the ground
And when at last some kindness found you
Then it was as though you had slept
And the crowd in the dark around you
Were all taking one more step.

Oh, the warmest of standing water
It may some day come to freeze
So you'll tell your sons and your daughters
How to live with times like these
Tell them when their hearts are frozen
To trust their feet instead
When there is nothing left but motion
And taking one more step.

When we find that we are laughing
And we're running in the sun
Then we know that we still are breathing
And the longest night is done
And finally resting from the battle
Wondering where our feet have led
Amazed at how we traveled
By taking one more step.