Throw Out a Lifeline

The last I wrote here I'd had a breakdown. A pretty good one. I didn't take my meds for a week. I wasn't eating. I had hit apathy so hard that nothing mattered at all to me. Part of this, Jb and I am sure is that I lost my therapist for about three weeks while she was nursing her son who'd shattered his foot and had to have multiple surgeries. I don't think I understood how very important therapy had become for me. How balanced it helped to keep me.

My dose has changed again. 100MG of Zoloft, 300MG of Lamictal twice a day, and Klonopin 3 times a day. We're winnowing the meds down, which is one of the reasons I like this psych. He had tried me on Lithium, and I couldn't stay hydrated enough to keep up with the shakes and disoriented, vertigo-like sensations. So we dropped as not a good drug for me.

In between, I've been moving along as well as I'm able. I had a week and a half after the major depression where I couldn't sleep. I'd be up until 5 am and running on 4 hours of sleep a day. I was restless in bed, could not fall asleep, thinking and thinking and thinking. I think I might have swung up into a bit of a hypo mode. Anyway, now that's gone, as if hypo episodes burn my body out, and now I'm feeling exhausted and unmotivated and all around... feh.

An amazing thing happened last night, though. Jb came with me to therapy. He actually wanted to. How many guys would do that for you? My therapist thinks he's the best thing on two legs. It was a productive session. I think he got to say a lot of things that were on his mind, and none of them exactly hurt or were negative toward me, but I couldn't help feeling guilty, and ashamed, and humbled by how much he truly cares for me, regardless of my condition. There was so much love and worry there that it really made me tear up.

So. Apparently, I have the best boyfriend in the world.

Last tidbit about what I've been dealing with. Balance issues. I'm still having them. In fact, right after the therapy appoint when we got home, I literally fell on my ass when I got out of the car and rolled down the grassy slope. I'm always tottering. I almost fell on Jb while he was lying on the bed, and when I was cleaning the other week, I feel smack on the metal garbage can we keep in the front room. I've bruises on my arm, bruises on my foot where I dropped a fan on it, and I've fallen into the closet door in the bathroom more times than I can count.

What else. I've a DHHS appointment to review my foodstamps and temporary disability. It's at 8am, and there's really no way we can work the single car situation with Jb working. I've called to see if they'll reschedule, but I had to leave a message. I'll try again later because frankly, I don't trust them to get back to me.

And the SSDI. I got the info about my doctors, though I couldn't get all the dates of tests and visits. I had to fudge and guess years of when I saw some of them. Best I could do. But I can't seem to get further than that. I brought up the online application page and just sat there looking at it for an hour, overwhelmed and unable to start it.

Lost It, Again

I lost it in the office at the psych's. Completely, utterly broke down. Shaking, sobbing. I think I used half his tissue box. I couldn't stop. And he just sat there and let me cry, which made me feel stupid and dumb and broken. I admitted I hadn't been med compliant and that I couldn't keep up with the hydration on the Lithium to offset the side effects. And when he suggested Abilify, I had to shoot that down because I'd been on it and gained 50lbs. And that's when my last psychiatrist suggested bariatric surgery rather than meds. What the fuck?

So I'm out in the parking lot outside the office, calling Jb, because I suddenly realize what day it is and that he's not getting paid 'til next Friday, and I blew all our foodstamps on food for, like, 4-5 days and a bunch of crap, and we've a whole other week we need groceries for. So I fucked up. And I'm bawling on the phone to him about that. And I can't stop. I can't stop crying. Up and down, up and down, up and down. Fucking roller coaster, and I want off. But no, the psych says, "That seems to be symptomatic of your illness." So it's official: I'm a rapid cycler.

Anway, prescription changes: off the Lithium. Still on the Lamictal and Klonopin. Wellbutrin is now gone. Zoloft has been up from 50 to 100MG.

They're Back

Psych took me from 600 Lithium to 300 because I was showing side effects. And while Lithium at 600 seemed to stabilize my mood, it stabilized it at a moderate depression. The 300 Lithium, however, doesn't stabilize me. I've had one 3-4 day period of hypo/mania, and I crashed afterward into a moderate depression. This is hell on my relationship with Jb. It's hard to feel close--for him, as well, I imagine. I don't know how to get closer to him when I feel like this. I feel so self-centered and day-to-day. The financial situation doesn't help. We argue over spending $5. That's how bad things have become. And the IBS just gets worse and worse.

Med Update

Therapist is going to help me fill out my SSDI form. My psychiatrist is behind this as well, which helps having the two behind you.

As for meds, psych is dropping me down to 300MG Lithium. I was showing side effects: shaking hands, disoriented, walking like a sailor. He suggested I hydrate more.

Obligated

I feel somehow obligated to put up a post, to talk about what's going on with me. But I don't have anything to say. I can't get up quickly, or slowly, and I can't bend over or else I lose my balance. I smacked my head into the closet door yesterday and nearly went down on the Ikea rug. The shakes are worse and are making it hard to type or use the mouse. I can't tell if the lymphedema is worsening because of the lithium or the deteriorating stockings because I can't afford new ones. And I forgot to eat dinner last night. It sat there right next to me, but I kept forgetting it was there. Jb tried to make me eat it. I just put it in the fridge. I am ... nowhere. I see the psych and therapist on Wednesday. Until then, I remain tired (I'm not sleeping well), unmotivated, and I feel like an old lady at 33. It's wearing on me. On a scale of 1-10 today, 10 being the best I've ever felt, which is more like a 12 when I'm hypo, I'd say I'm walking around at about a 3.

Overwhelmed

I can't help feeling overwhelmed lately. I've gone to 300MG of Lithium twice a day, and whether it's that or something else, I've started getting the shakes, the spins, mild headaches, constipation (which is funny, considering the IBS alternative), and dry mouth. All this on top of an IUD period. (An IUD period means you will bleed like a stuck pig, for days and days. You will go through three boxes of tampons, having to use one every two hours at your worst, and the cramps make you feel like shit.) So. Good times right now.

Perhaps it's all the physical symptoms that are making me feel touchy. I'm reactive to every bit of criticism, every bit of rejection. When Jb's goofing around, doing a little smack talk, I get upset. I feel disrespected. I can't find it funny anymore. I'm touchy about everything. I want to be coddled, loved, take care of, and I don't feel that at all. And then Jb yells at me for not being involved in our relationship. And I'm absolutely fluxommed.

And Jb and I are fighting again. I'm supposed to clean up, do the dishes, make dinner, do the finances, plan meals, go grocery shopping. This is supposed to be me carrying my weight. But I have no interest in it. I've no interest in writing this blog. I've no real interest in anything. Thank god the book I'm reading has only 2-3 page chapters because that's about all I can manage at once. And there's SSI to think about. I should start that. I haven't the faintest where to begin. I'm just ... I'm tired.

I hate smoking out on the front stairs now because there's something about looking down the cobbled walkway that sets me shaking, that makes me want to say, "Good dammit!" And then the knives start to glimmer when I wash them. They look appealing. And I start to wonder if you can overdose on Klonopin, and if it'd just be like drifting to sleep. Because I'm a coward when it comes to suicide. But it doesn't mean that I don't want to sometimes.

Lady Lithium

I call her lady because only a female can come up on you so sly. Four days in, and I'm noticing the effects: the constant diarrhea and abdominal pain (it makes my IBS look like a kitten), the severe dry mouth. The dry mouth I can handle. The gastro-intestinal stuff ... Gah, wasn't IBS enough? I've been up and down all night in the bathroom. I haven't slept well. I'm dreading when I go to lithium twice a day. The bathroom and I will become very intimate, I'm guessing. Least the lithium doesn't act totally like IBS. I don't get the sweats, the shakes, then throw up.

And on another front, I'm still having the spins.

I was also a bad girl yesterday. The day before yesterday, I cancelled my therapist appointment. I was so down that I simply couldn't handle having to go out, much less drive Jb to work and back, then out to my therapist and back, the back to pick up Jb, etc. I just couldn't deal. A moderate depression as these things go. Not suicial like the week before, but depressed enough to be absolutely immobilized. My therapist is a doll and has volunteered to help me fill out SSI because ... I just can't get started on it myself. It's far too overwhelming. She's even volunteered to make a home visit to help. So I hope I didn't piss her off by canceling. I haven't heard from her yet.

I guess my big thing to do today will be to call SSI and get them to send me a Starter Kit. Their webpage says, "Don't worry if you don't have all the information. We'll help you get it." I wonder which information they mean, and if it's true. I've heard that you have to give them everything they want and be as detailed as possible. I kept horrible records until some time after the hospital. I thought I was merely depressed, that there was no help for people like me. I didn't know I had options, safe harbors, like the hospital, SSI.

Change in Meds

Started Lithium today. I almost don't care about the horror stories, the side effects, I'd take anything right now if it'd help with these mood swings. I'm riding a roller coaster, where the drops are steep and the rises aren't nearly slow enough.

New Psych, New Evaluation, Same Diagnosis

I love the new psych. I am not going back to the old one. The new one spent an actual hour and a half with me, listening to me, to my history, to my ideas about my meds. I was prepared this time. In all fairness to my last psych, he got me straight from the hospital, and all I could do for several visits was sit in the chair and cry. But this time, I used my resume to help create a timeline of episodes of depression and hypomania and brought along a list of my meds and when I was given them.

On first blush, the psych agrees that I have some form of bipolar. Probably bipolar II because I don't seem to show a history of full blow mania or psychosis. He's shoving Remeron off my list of meds, which I'd tried to talk my last psych into doing because I knew it wasn't working for me. And while my new psych thinks Lamictal is good for some types of bipolar, he thinks Lithium might be the better choice for me, but we need some baseline blood tests. I go to my new PCP Monday, and my psych gave me a "prescription" for what he required in the blood test.

He also wants my past history from the hospital, from my last psych, and from my last PCP. He's the first psych to be so thorough. And I could tell he listened to me. He agreed with me when I said that I thought they were merely throwing drugs at me and couldn't understand why I was on three -- count them: three -- anti-depressents. He'd like to have me try Lithium and get me down to one anti-depressent or maybe a muscle relaxant? That last bit I'm not sure of. I need to research that more in the treatment of bipolar disorder.

It was a second opinion, though, and he seemed utterly professional and interested in my input -- that I wanted an evaluation and a diagnosis. When I walked out the door, I told him how glad I was to have found him and that he seemed very professional and gave me a better evaluation than I've had since the hospital. He kinda smiled, like he was feeling a little self-conscious, and told me I was a very good patient. So I'm encourage. He seems like someone who's willing to work together on my diagnosis, and that matters a great deal to me.

I really lucked into this non-profit organization. They are, without equal, the best treatment I've received since being in Maryland. I even called the head honcho of the place to let him know how happy I was with my therapist and the meeting with my psychiatrist. After some shoddy treatment, you don't realize what a relief it is to finally find the holy grail of psychological specialists. And we often overlook people who do their jobs, and do them well. I wanted to be sure the head honcho knew what a great set of people he had.